Katelyn did indeed get discharged on Monday! We are so happy to have her home with us!! Well I use the term “home” loosely because we are still in Houston, but as long as we are all under one roof we won’t complain.
We took Katelyn to her first heart clinic appointment on Thursday. She is (and always has been) a loud breather and moves her whole body with every breath just about… so we had to have a chest xray to make sure her lungs were looking good; which they were. The doctor also started her on a magnesium supplement and she will most likely begin an iron supplement at her next clinic appointment on Thursday. Monday she goes in for a 6 hour infusion, she gets an IV dose of a medication called cytogam every 2 weeks. Cytogam is to prevent her from contracting CMV which is a common bacteria that most people have been exposed to and will have no symptoms, other than possible cold symptoms. Her donor heart tested CMV positive and she was CMV negative, so the infusion is a preventive measure.
She gets a total of eight medications spread out over 7 different dosing times, for a total of 18 doses. We draw up her meds the night before and have them labeled so we know when she gets each one. It looks very overwhelming on paper but its really not too bad, and we are very lucky she actually likes to take them all.
She is eating well and gaining weight. Shes up to about 8 1/2 pounds already, which doesn’t seem like much for a 3 month old, but its a huge accomplishment for her! We are so proud of our tough little girl!
Katelynsmarathon 
Courtney…you have done an amazing job on Katelyn’s blog. Katelyn has come so far in a relatively short time, although I’m sure it has seemed like an eternity. I keep up with your posts and keep you all in my prayers. Pam