Friday, September 30

Last week, we had a rough couple of days. Katelyn ended up being admitted to the hospital on Friday night, luckily it was nothing heart related! She had some diarrhea and the dr. was concerned she was going to get dehydrated or have other complications. She had a EKG and chest xray, got some IV fluids, and was good to go Saturday evening. The poor little baby had to get stuck 5 different times for the nurse to get the IV in though, that was by far the worst part.

Yesterday she had a clinic appointment. Her heart looked great on the echo and like at every appointment, her doctors were very pleased with her physical exam. Her medication levels are out of whack though, one test will show they are low, then a week later she gets retested and they are high, then a couple days later they are low, and so on. Its her anti-rejection meds, so we don’t want to mess around with that! Unfortunately her dr. won’t release us to go home until they are stable for a week. Boo. Our new anticipated going home date is next Saturday the 8th. She is having blood drawn on Monday and next Friday to check the levels. We are praying they are between 10 and 12 both days! If so, we are homeward bound on Saturday! Yesterday they gave us a heart monitor for her to wear for 24 hours. She wore it until today at 10am, she haaaaated it! She didn’t sleep well and couldn’t really get comfortable. Also they stopped her blood pressure medicine 🙂 Its great to knock another one off the list!

On Monday we have an appointment with the genetics team, they ran tests on her when she was first admitted in June and we are finally getting the results. I’ll update with those after the appointment.

As always, we thank everyone for their continued prayers for Katelyn and our family! ❤

watching her Bubba play DS, they are a match made in heaven 🙂

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loving her baby hospital gown

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tasty thumb

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the dreaded heart monitor

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time for a close up!

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About katelynsmarathon

Our blog follows the journey of our sweet baby girl, Katelyn Mae. She was born April 14, 2011. At 5 weeks old she was diagnosed with dilated cardiomyopathy (DCM) and we were informed she would need a heart transplant. We were transferred to Texas Children's Hospital in Houston, TX. On Sunday, July 3rd we received the life changing call that a heart was available for our princess. Katelyn is absolutely thriving with her new heart and we are eternally thankful for the miracle workers we call her doctors, and the donor family that gave the gift of life to our Kate.
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One Response to Friday, September 30

  1. Debbie childress says:

    I will pray for her release next week. It is better to be safe.

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