We have great news to report!
Katelyn had her very first biopsy on Friday morning, and she did great! We couldn’t have asked for a better trip.
The doctors make this procedure as non- evasive as they possibly can, but its still a frightening thing to experience. Katelyn was put under general anesthesia and intubated. They put a catheter, basically a small tube into her femeral artery in her groin. They clip tiny pieces of her heart to be biopsied at the lab. They also check pressures and oxygen saturation in her heart.
First off, the best news… she scored a zero on her biopsy! That means she is experiencing absolutely no rejection at this point. They score the biopsies on a 0-3 scale, anything that is a 0 or 1 they consider healthy and don’t require any special treatment. A 2 or 3 requires IV doses of steroids to combat the rejection. Chronic rejection requires more drastic measures, and patients are usually listed for another transplant.
Her pressures and oxygen saturation were perfect. Her doc also checked the connection spot from where her original heart was and where the transplanted heart are connected. He said at time of transplant there was a slight size difference and the vessels in the new heart were getting slightly pinched. That area has now been evened out and they are fitting together great. This means she can stop her daily aspirin! Another med down 🙂
Normally at the yearly biopsies they also check the coronary arteries for hardening, this is common for transplant patients and can also require another transplant. Kate’s doc didn’t see any point in checking for that now, since she is only 6 months out and she is doing so well.
Katelyn is just over 17 lbs now, since she made it to the ideal weight for her biopsy we are able to discontinue her higher calorie milk.
Its hard to believe in just 3 months we will be celebrating her first birthday! She is really trying to crawl, and I don’t give it much longer till she is cruising around the house. This little super star doesn’t let anything stand in her way, and sometimes its easy to forget that she’s not a “normal” baby. We have even started getting her out of the house on occasion. She’s gone to a couple different stores and restaurants in the last few weeks… I’m the crazy mom you see with the antibacterial wipes wiping down every surface of the shopping cart or restaurant table!
We are still so thankful for the support we receive from everyone. The kind words and prayers really go a long way. Thank you!